Making an Advanced Care Directive with decision-making support: case study and report

This case study explores the implementation of the Medical Treatment Planning and Decisions Act 2016 (VIC) through the experiences of a person with intellectual disability, their medical practitioner and supporter in making an advance care directive.

The findings identify shortcomings of the Act that effectively exclude people with severe intellectual disabilities from supported decision making. They illustrate the need for greater institutional support for supported decision making and educational strategies for medical practitioners if the potential of the Act is to be realised for people with intellectual disabilities.

Finally, the findings indicate the relevance of the La Trobe Support for Decision Making Practice Framework as a guide to decision support in this context.