“Still me” : Living with dementia, not defined by it

“What a lot of people don’t understand is that if 20 people are diagnosed with the same type of dementia, not one of them will experience it the same”

Published: 16 July 2025
  • national
  • 16 July 2025
  • Aged Care Insite

For many of us, the battle with dementia begins well before the formal diagnosis. It starts with questions. Unsettling changes. A creeping sense that something isn’t quite right, and the long, frustrating journey to get answers.

Then the confirmation comes. A diagnosis. The next nine to twelve months are incredibly hard. We try to come up with ways to fix the problem, which, at that stage, is still in its infancy, while listening to people tell us what we should and shouldn’t do.